For this new podcast, I d the pleasure of interviewing Sandra whose son Gabriel suffers from a rare mitochondrial rare disease. His disease, neurodegenerative, is linked to a mutation of the mtND5 gene, it is unfortunately incurable and affects a few dozen people in the world. To help research, gather an army around her son and raise public awareness of rare diseases and disability, Sandra created the “Warrior Gab” association…her son’s nickname. Together, we look back on this extraordinary adventure, its next battles and we take stock of the research. Good listening to all!
To help Sandra and Gabriel: