Rare Diseases
Rare but not alone
Mission
Accelerate rare disease diagnosis
There are 7,000 rare diseases affecting 300 million people worldwide. 75% of patients are children. 1 in 2 patients do not have an accurate diagnosis. A quarter of patients wait 4 years to get a diagnosis. Our program brings together world experts to improve this dire situation.
We put
patients
first
Digital Platform
Come and check it out!
Fondation Ipsen brings you a variety of content to help advance rare disease detection. Browse our webinars, videos, podcasts and educational courses to discover cutting-edge science and meet world experts. Discover educational stories with your children, join us on a historical journey, and advocate to improve the lifes of patients.
BookLab
Books for all
Fondation Ipsen’s publishing house publishes books for all ages. Pick a book. It’s free !
What's new?
The Transformation
Confined to a wheelchair following a life-changing accident, a former boxer turns to wheelchair rugby in order to rediscover his taste for competitions and victories. Claiming to be concerned only with the future, an exceptional situation will lead him to reconsider the road traveled.
The Race of a Lifetime
Between friendship, jealousy, competition and handicap, relationships are built and torn between athletes until they reach the Paralympic dream.
The Boccia Mountain
Suffering from a rare degenerative disease which gradually paralyzes her, our heroine finds her strength in the sport of boccia – providing her with the will to fight and always surpass herself in order to reach the top by completing the Paralympic Games.