Rare Diseases
Rare but not alone
Mission
Accelerate rare disease diagnosis
There are 7,000 rare diseases affecting 300 million people worldwide. 75% of patients are children. 1 in 2 patients do not have an accurate diagnosis. A quarter of patients wait 4 years to get a diagnosis. Our program brings together world experts to improve this dire situation.
We put
patients
first
Digital Platform
Come and check it out!
Fondation Ipsen brings you a variety of content to help advance rare disease detection. Browse our webinars, videos, podcasts and educational courses to discover cutting-edge science and meet world experts. Discover educational stories with your children, join us on a historical journey, and advocate to improve the lifes of patients.
BookLab
Books for all
Fondation Ipsen’s publishing house publishes books for all ages. Pick a book. It’s free !
What's new?
Webinar: Finding rare diseases in common places
In this webinar, our experts will discuss strategies for implementing broad rare disease detection across all doctor–patient interactions.
Boccia: a great strategic game, some friends and the dream t
For this podcast, I met Aurélie and Claudine, respectively player and trainer of Boccia, a game practiced by many disabled athletes.
The History of Rosalind Franklin
Discover the History of Rosalind Franklin who importantly contributed to the discovery of the double helix structure of DNA.