Rare but not alone
Accelerate rare disease diagnosis
There are 7,000 rare diseases affecting 300 million people worldwide. 75% of patients are children. 1 in 2 patients does not have an accurate diagnosis. A quarter of patients wait 4 years to get a diagnosis. Our program brings together world experts to improve this dire situation.
Come and check it out!
Fondation Ipsen brings you a variety of content to help advance rare disease detection. Browse our webinars, videos, podcasts and educational courses to discover cutting-edge science and meet world experts. Discover educational stories with your children, join us on a historical journey, and advocate to improve the lives of patients.
Books for all
Fondation Ipsen’s publishing house publishes books for all ages. Pick a book. It’s free !
Depression is more than feeling sad sometimes. For Bindu, depression can make it hard to get out of bed in the morning or focus at school. Even working on an exciting design project can be difficult, with emotions that go up and down.