Rare Diseases
Rare but not alone
Mission
Accelerate rare disease diagnosis
There are 7,000 rare diseases affecting 300 million people worldwide. 75% of patients are children. 1 in 2 patients does not have an accurate diagnosis. A quarter of patients wait 4 years to get a diagnosis. Our program brings together world experts to improve this dire situation.
We put
patients
first
Digital Platform
Come and check it out!
Fondation Ipsen brings you a variety of content to help advance rare disease detection. Browse our webinars, videos, podcasts and educational courses to discover cutting-edge science and meet world experts. Discover educational stories with your children, join us on a historical journey, and advocate to improve the lives of patients.
BookLab
Books for all
Fondation Ipsen’s publishing house publishes books for all ages. Pick a book. It’s free !
What's new?
Artificial Intelligence in Science
The book, written by OECD, examines various topics, including the current, emerging, and potential future uses of AI in science.
Webinar – Advocacy in rare disease: Closing the fundin
In this panel discussion, participants will discuss how closing the funding gap in rare diseases requires a multi-faceted approach.
The story of the Royal Hotel of Invalides
Discover our new series of podcast dedicated on the Royal Hotel of Invalides (Paris) which was the first institution created to care for wounded soldiers