Rare Diseases
Rare but not alone
Mission
Accelerate rare disease diagnosis
There are 7,000 rare diseases affecting 300 million people worldwide. 75% of patients are children. 1 in 2 patients do not have an accurate diagnosis. A quarter of patients wait 4 years to get a diagnosis. Our program brings together world experts to improve this dire situation.
We put
patients
first
Digital Platform
Come and check it out!
Fondation Ipsen brings you a variety of content to help advance rare disease detection. Browse our webinars, videos, podcasts and educational courses to discover cutting-edge science and meet world experts. Discover educational stories with your children, join us on a historical journey, and advocate to improve the lifes of patients.
BookLab
Books for all
Fondation Ipsen’s publishing house publishes books for all ages. Pick a book. It’s free !
What's new?
Autism
Tracy is autistic. She is 13 years old, and her life is a journey. A journey to grow, a journey to progress, a journey to be loved as she is, just like everyone else.
Leukemia
Amy is battling leukemia. During a lumbar puncture, she falls asleep and becomes “Super Amy”, a unique heroine who helps children facing the same diagnosis.
Bullying
Alex starts a new school, and his classmates are not the most welcoming. Fighting against bullying, he reaches out to an adult and finds a way to regain his self-confidence.