Rare Diseases
Rare but not alone
Mission
Accelerate rare disease diagnosis
There are 7,000 rare diseases affecting 300 million people worldwide. 75% of patients are children. 1 in 2 patients do not have an accurate diagnosis. A quarter of patients wait 4 years to get a diagnosis. Our program brings together world experts to improve this dire situation.
We put
patients
first
Digital Platform
Come and check it out!
Fondation Ipsen brings you a variety of content to help advance rare disease detection. Browse our webinars, videos, podcasts and educational courses to discover cutting-edge science and meet world experts. Discover educational stories with your children, join us on a historical journey, and advocate to improve the lifes of patients.
BookLab
Books for all
Fondation Ipsen’s publishing house publishes books for all ages. Pick a book. It’s free !
What's new?
The Story of Vampirism
In this podcast, we talk about pop culture, a rare disease and various events that took place in Eastern Europe during the 18th century.
The Rare Disease Gazette#9
In this new issue, some world’s leading experts re-imagined rare disease detection. You can also learn more about the Human Genome Project and our movies’ selection.
Webinar – Personalized therapies in rare disease
During this free webinar, with Science magazine, the experts will debate on the interest of personalized medicine for trzating rare diseases.