Fondation Ipsen

Rare Diseases, from A to Z

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By Lucie ALBON

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By Lucie ALBON (in collaboration with Plateforme Expertise Maladies Rares ‒ Bourgogne-Franche-Comté, Prof. Laurence FAIVRE, Elodie GAUTIER, Sonia GOERGER)
Age: all ages
Pagination: 64 pages
Size: 250 x 250 mm
Binding: Paperback
Language: French, English
Publication: February 2023
ISBN: 978-2-493373-52-6 (Printed book_French version)/ 978-2-493373-53-3 (ePub_French version)/ 978-2-38427-110-8 (Printed book_English version)/ 978-2-38427-111-5 (ePub_ English version)

A true sensory experience, this book invites us to discover the diversity and variability of rare diseases. Using a mixture of different visual art techniques, Lucie Albon’s artwork conveys the full complexity of rare diseases. As each rare disease has a unique impact on each patient, the images created by the artist speak to the viewer in their own unique way.
Yet, in the same way that the 26 letters making up the alphabet form the basis of each word, the rare diseases form a community so that no one should ever feel alone.

Pencils, a few pieces of paper cut-outs and a little ink… With these components, Lucie Albon is able to invent any universe without ever compromising her artistic originality.
Winner of the Villa Kujoyama, she is equally comfortable working on large scale city murals as she is illustrations for books. She has published more than thirty books for young people at Glénat, L’Élan Vert, Bluedot, Utopique or Rouergue. She has collaborated with Elle magazine and continues to produce artwork for the press.
Trained at the Beaux-Arts d’Angoulême and then at the Arts Décoratifs de Strasbourg, she possesses a great mastery of traditional techniques and the ability to reclaim them in order to achieve a bare simplicity that opens the gates to the imagination…
Agent :

The Platform of Expertise for Rare DiseasesBourgogne-Franche-Comté (PEMR BFC) is one of the first PEMRs set up in France. The purpose of these platforms is to share expertise and to pool knowledge, skills and resources among different networks and accredited reference centers. This platform is coordinated by the Dijon Bourgogne University Hospital in partnership with the Besançon University Hospital. The two institutions conduct numerous shared projects in the field of rare diseases. The PEMR BFC federates 11 Rare Disease Reference Centers (CRMR) and Resource and Competence Centers (CRC) and 101 Rare Disease Competence Centers (CCMR) belonging to 22 French Rare Disease Networks. The main objectives of the platform are to inform as many people as possible about rare diseases, to enable patients and their families to be directed to expert centers and to support them in their actions, to optimize the care paths in order to adapt them to each individual, to train professionals and to support clinical trials and research in the field of human and social sciences.

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