Fondation Ipsen

Les Fentes de A à Z

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By Cécile Chapuis-Vandenbogaerde

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Age: All ages
Pagination: 40 pages
Size: 297 x 210 mm
Language: Français
Publication : December 2023
ISBN: 978-2-38427-185-6 (pdf)

A digital dictionary has been developed by the Center of Reference for Clefts and Facial Malformations (MAFACE). Designed for the general public, it includes over 300 definitions of medical and paramedical terms used in the treatment and follow-up of patients born with a cleft lip and palate.

The dictionary contains medical, surgical, speech therapy, or orthodontic terms that may be used during consultations or in reports sent to families and healthcare professionals. Terms describing the structures for managing patients with clefts complement the book.

Each term is given a short and accessible definition for all audiences. Some terms are accompanied by illustrations.

The terms used in letters or during consultations are often very technical:

  • In a therapeutic patient education approach, this dictionary aims to help families better understand a consultation, ensuring better collaboration between healthcare providers, patients, and their families.
  • For healthcare professionals outside reference and competence centers, this book helps to better understand the correspondences received and the feedback from consultations by families and patients. The dictionary serves as a tool to connect with expert centers and patients. An index lists the defined terms at the end of the book.

As many terms are shared by the five networks of the TETECOU network, this glossary serves as a cross-cutting tool that can be used for informing patients followed in each of the networks (CRANIOST, MAFACE, MALO, SPRATON, O-RARES). It is freely accessible.

This tool was written by Cécile Chapuis-Vandenbogaerde, a speech therapist at the MAFACE Reference Center at Necker-Enfants malades Hospital, with the participation of professionals from the CRMR MAFACE.

It received financial support from the TETECOU Network, as part of the “Training and Information Tools” call for projects in 2022.

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