Et tout bascule
Survivre à l’inimaginable. Les mémoires d’une mère
Translated from English by Emilie Frapiccini
Age: All ages
Pagination: 312 pages
Size: 130 x 200 mm
Language: French
Publication: October 2023
ISBN: 978-2-493373-37-3 (printed version)/ 978-2-493373-38-0 (ePub)
Free
This is the story of India, an ordinary little girl who loves running and climbing trees. Then, one day, she begins to fall, more and more often… And everything changes.
This is the story of India, a teenager like no other. She has become so weak that she can no longer dress herself. Treatments and side effects follow one another. After years of wandering, the diagnosis fell like a knife: SMA-PME, a rare and incurable neurodegenerative disease. Because no treatment existed at the time, India died at the age of 16, in 2013.
How to survive the unimaginable?
Over the pages, Lesley Buxton shares the story of a mother who, one day after another, confronts the inconceivable; the story of six years of struggle, between joy, hope and pain.
In 2019, in France, another young girl, Calixte, is diagnosed with SMA-PME. Rejecting fatality, her parents set up Asap for Children to bring together the families concerned and mobilize medical research. Despite major scientific advances, Calixte died in the spring of 2023, just as an innovative treatment was within reach. Unfortunately, the very high cost of production is hampering hope of a cure for children affected by SMA-PME.
Visit: www.asapforchildren.org
Lesley Buxton studied drama at Mountview Theatre School in London, England, and holds an MFA in creative non-fiction from the University of King’s College in Halifax, Nova Scotia. Her book One Strong Girl, translated into French for the first time, won the inaugural Pottersfield Prize for Creative Non-Fiction in 2018.