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The Rare Disease Gazette#21
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Driving Advances in...
Les Fentes de A à Z
A digital dictionary has been developed by the Center of Reference for Clefts and Facial Malformations...
The Rare Disease Gazette#19
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Taking care of...
The Rare Disease Gazette#18
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Working the regulatory...
The Rare Disease Gazette#17
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Closing the funding...
Depression
Depression is more than feeling sad sometimes. For Bindu, depression can make it hard to get out of bed in the morning or focus at school. Even working on an exciting design project can be difficult,...
Asthma
Rafael loves being outdoors with his family. But when his cat, Alfredo, disappears on a camping trip, Rafael finds himself on an unexpected adventure in search of his furry friend....
Sickle Cells Disease
Arabella is excited when she’s invited to compete in international track and field races. She is also nervous. Living with sickle cell disease means Arabella needs to take extra steps to keep...
S0ciety and INclusivity #1
At the heart of our society lies a treasure often overlooked: diversity. In this inaugural issue of So In, we delve into the essence of this wealth, exploring the many facets of...
Ma Petite Sœur est une guerrière
Three-year-old Zélie becomes a big sister, but the baby has a heart defect. This book recounts the difficult journey of this baby, but above all of this big sister, sidelined and at the same time...
Et tout bascule
This is the story of India, an ordinary little girl who loves running and climbing trees. Then, one day, she begins to fall, more and more often... And everything...
The Family
As soon as her son Enzo was born, Cindy "knew" that something was wrong. Months of isolation, mistrust and misunderstanding followed... a period of diagnostic wandering typical of rare...
Charlotte, the Little Marmot
At night, when the whole burrow is peacefully asleep, Charlotte, the little groundhog, is all excited. Mama Marmotte's gentle lullabies do nothing, and the days that follow are...
Hercule, the Little Bubble Fish
Hercules, the little fish, lives in a bubble. No one dares venture too close, and Hercules remains alone, isolated from the wickedness that surrounds...
Willi, the Little Grizzly
A lonely little grizzly, Willi is getting ready for his first day at school. But doors are closing in his...
The Rare Disease Gazette#20 SPECIAL EDITION
In this special edition, Erika Berg, PhD, hosts a Fireside Chat about the intersection between the FDA and rare disease, with Robert M. Califf, Commissioner of Food and Drugs at the United States...
Living with a Rare Disease Worldwide. Volume 2
This free book, made in collaboration with the National Press Foundation, gathers press articles on people living with a rare disease accross the...
L’Odyssée artistique des enfants
This book is the result of workshops carried out as part of L'Odyssée Artistique des Enfants, an event that brought together 12 artists in 12 university hospitals across...
The Rare Disease Gazette#16
In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts on crafting the public...
The Rare Disease Gazette #15
In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts to survey the...
Foundations in France
This book examines several types of foundations in France, including endowment funds, sheltered foundations, foundations recognized as being of public utility, and corporate foundations....
Artificial Intelligence in Science
The book, written by OECD, examines various topics, including the current, emerging, and potential future uses of AI in...
Science Communication
The purpose of this guide is to encourage communicators to convey science effectively and to help scientists communicate their findings to the...
L’Orphelin Revert
Discover the story of Claude Revert, a marathon runner, who lives with a rare disease: Hirschsprung's disease. Despite the pain and multiple surgeries, Claude is still determined to move...
Rare Sounds
This free poetry book collects poems about patients living with a rare disease. This book was written by Roopa Ramamoorthi, a scientist and a...
Uncovering Rare Disease. Volume 2
This special edition gathers all the conversations with the experts invited during our 2022 webinars (diagnosis, treatment and advocacy in rare disease)....
The Rare Disease Gazette #14
In this Rare Disease Gazette, some of the world’s leading experts discussed about the profoundly personal side of rare disease, to humanize the therapeutic journey of...
Promising Practices
This report includes findings, conclusions and recommendations for adressing gender parity in Science and...
Rare Diseases, from A to Z
This new and free alphabet book invites to discover the diversity and variability of rare diseases. 26 letters, 26 rare...
Life with Diabetes. Your control guide
This new guide, offered by Fondation Ipsen, is based on medical research and provide many tips to manage diabetes (regular monitoring, physical activity, diet,...
The Rare Disease Gazette #13
In this new issue, international scientists discuss the need to internationalize databases and patient registries for rare...
The Rare Disease Gazette #11
In this new issue, some of the world’s leading experts in rare diseases discuss personalized...
Disability: affectivity, sexuality and dignity
Discover our new free book on disability. This book addresses sensitive questions to reflect constructively on...
The Rare Disease Gazette #12
In this Rare Disease Gazette, experts discuss how patients living with a rare disease in underserved communities can benefit from medical...
Diabetes
My Life Beyond is a free collection of comic books created by a patient and his physician. Discover Emily enjoying her life despite her...
Neurofibromatosis #1
My Life Beyond is a free collection of comic books created by a patient and a physician. Discover the story of Leo who lives with...
Vaccines
My Life Beyond is a free collection of comic books created by a patient and his physician. Discover this original story on...
Hugo and Eleanor, the Elder Boars
When the two eldest members of a boar family must take care of two little kids with a disease that prevents them from seeing and feeling properly, things don't go as...
Arno, the Little Sparrow
Arnaud is an adorable little sparrow full of vitality. But, one day, the wind announces to his parents that he has a disease that will take away the beautiful things he has acquired over the...
Wolfy, the Little Wolf
At snack time, by the fireplace, Grandmother Wolf tells her cubs the story of Milou, a strange little wolf who had difficulty speaking and...
Uncovering Rare Disease. Volume 1
In this special edition, AAAS/Science Magazine has compiled all of the conversations published in 2021 in The Rare Disease...
The Rare Disease Gazette #10
In this Rare Disease Gazette, experts invited by Fondation Ipsen discuss the fragmentation of data and...
Little Issue #10
Little issue is a free magazine for children living in underserved communities. It contains scientific and educative...
Little Issue #9
Little issue is a free magazine for children living in underserved communities. It contains various scientific and educative...
Little Issue #8
Little issue is a free magazine for children living in underserved communities. It contains various scientific and educative...
Little Issue #7
Little issue is a free magazine for children living in underserved communities. It contains various educative and scientific...
The Transformation
Do you know wheelchair rugby? Discover the story of a parathlete playing this incredible parasport in this manga, last story of a...
Little Issue #6
Little issue is a free magazine for children living in underserved communities with various educative activities. Discover here...
The Race of a Lifetime
Discover the story of a parathlete tackling all obstacles in this free manga book, first story of a...
Deciphering the difference
This scientific and historical book explains how people with disabilities lived in the past and invites us to build more inclusive...
Little Issue #5
Little issue is a free magazine for children living in underserved communities with various educative activities. Discover here...
The Boccia Mountain
Do you know Boccia? Discover the story of a parathlete playing this incredible parasport in this manga, first story of a...
The Rare Disease Gazette #9
In this Rare Disease Gazette, our experts re-imagine rare disease detection and you can discover the history of the Human Genome...
Book Lab – Survey
Thank you for sharing with us your thoughts about our free books. This little survey will help us in the development of the upcoming...
Living with a Rare Disease Worldwide. Volume 1
This free book, made in collaboration with the National Press Foundation, gathers press articles on people living with a rare disease accross the...
Helping Children and Adolescents Cope with Disasters and other Traumatic Events
This free guide will help you identify the signs of depression and give you guidelines to help children and teenagers facing...
The Rare Disease Gazette #8
In this new Rare Disease Gazette, we discuss future pathways, from detection to diagnosis to treatment of rare diseases....
Autism
This free comic book has been developed by patients, physicians and author-illustrator Hey Gee. Discover the story of Tracy who is...
Leukemia
This free comic book has been developed by patients, physicians and illustrator Hey Gee. Discover the story of Amy who is fighting...
Bullying
This free comic book has been developed by patients, Mayo Clinic physicians and author-illustrator Hey Gee. Discover the story of Alex, who was...
The Rare Disease Gazette #7
In this rare disease gazette, some of the world’s leading experts discuss the role of primary care in detection and diagnosis of rare...
Sacha, the Little Cat
Suffering from a neuromuscular disease, Sacha will gradually lose the use of his legs. But, his wheelchair will not prevent him from continuing to play with his...
Merlin, the Little Feline
Discover this free book series for children: "Merlin the little feline" talks about the diagnostic journey faced by each persons living with a rare...
Marie, the Little Mouse
Marie has achondroplasia, a genetic condition that prevents her from growing normally. But her small stature will not stand in the way of accomplishing great...
The Rare Disease Gazette #6
In this 6th Rare Disease Gazette, find a discussion with leading experts on the psychological cost of rare disorders for patients, families and...
The Rare Disease Gazette #5
In this issue of our "Rare Disease Gazette", discover a discussion on Artificial Intelligence, which may help rare disease...
Paralympic Games
Discover 3 original manga books on 3 paralympic athletes ! A project made in collaboration with the French Paralympic Sports Committee and 3...
The Rare Disease Gazette #4
In this rare disease gazette, experts discuss neonatal testing for rare diseases and discover the history of Rosalind...
The Rare Disease Gazette #3
In this issue of the "Rare Disease Gazette", Fondation Ipsen invited experts to debate on the detection of rare diseases....
The Rare Disease Gazette #2
In this new issue, find a conversation with some of the world’s experts on rare disease diagnosis and the history of...
Life with asthma. Your control guide
This free e-book, written by international experts, provides many tips and practical sheets which will help you manage your...
Ephemeral
Kravin is a test subject for a new technology that implants a chip in the brain to broadcast advertisements during sleep. He is caught up in a frantic race for loyalty...
Warrior Movement Screen
Developed and produced in collaboration with the US-based non-profit Wounded Warriors Project (501c3), the Warrior Movement Screen features a variety of movement and physical exercises for veterans....
My Science Project
“I came out of a supermarket in central Washington DC and a man in dark classes asked if I wanted to buy a street paper from him. The vendors of such papers are often homeless or surviving on...
7 Questions to explain Coronavirus to children
A free book for children answering the questions that children may ask about the Coronavirus and the reasons for the...
Leave a trace. Spring 2020
This work is a collection of artistic proposals made by individuals during the singular lockdown period....
Story of poliomyelitis
From the first traces in ancient Egypt, to the discovery of vaccines and modern regulations, Florian Delval traces the history of polio, a history rich in discoveries and twists and...
Early rehabilitation
This is a translation from English of the guide Early Rehabilitation in Conflicts and Disasters published by Humanity Inclusion in January...
Sexual harassment of women
This book is a translation of the NAS report on sexual harassment of women in academic...
Exercise and physical activity. Your daily guide
Adapted from the Exercise and Physical Activity guide published by the National Institute on Aging at NIH, this book offers many tips and several types of exercises and physical activities to help...
Life with Alzheimer’s Disease. Your caregiver guide
Sometimes, taking care of a person with Alzheimer’s Disease makes you feel good because you are providing love and comfort....
Sleep well. Your guide for a healthy sleep
This book provide many tips and fact sheets will help you get a better quality of sleep and be healthier....
Glass Ceiling
“Thank you, good-bye …”, Meredith could not answer otherwise when she was told at the other end that she did not get the job she...
One of a Kind
In the industrial group Le Plénier®, Ramona is struggling to find her place. In the hope of finally being recognized for her work as an engineer, she accepts a multi-month mission aboard an oil...
Post-me
In a world connected 24 hours a day, a teacher, admired by his students, gives life lessons via social...
Little Issue #1
Learn measurements, be cautious about household hazards or explore the wonders of science... Little Issue invites children to discover the world around...
Little Issue #2
Swim safely, make the water clean or win the race against Coronavirus... Little Issue accompanies you for a beginning of the year placed under the sign of...
Little Issue #3
Fill up on surprises, find out why blood is red and memorize basic hygiene gestures in this new issue of Little...
Little Issue #4
Find out what kind of friend you are, learn geometry and good eating habits for good health with this new Little Issue!...
My coloring book
Discover how the human body works while having fun! All the little heroes from the first six albums of the collection are included in a colouring book “Curious Minds”. Hurry up, get your...
Cadherin is looking for a friend. Story of a protein
A children book about "Cadherin", a small protein, who is feeling terribly alone near her house named “Golgi”. She is now looking for...
Kimy sounds the alert. Story of the immune system
A children book about "Kimy", a chemokine, who is living in Alyssa’s body, helping her to stay healthy. But, one day it's the red...
Mister Cancer wants to occupy every space. Story of a disrupted cell
A book explaining cancer to children. A story about a cell which multiplies itself to occupy every space to become Mister...
The platelets stand in the way. A story about repairing injuries
Leo falls while playing football. Ouch! His knee is bleeding. Fortunately, the platelets are there to stop the bleeding....
Genie has an idea. A story about the genome
The Genome Kingdom consists of a single street, DNA Street. The Gene family lives there peacefully when one day, a bad Transposon wants to settle there. To make room for himself, he wants to destroy...
DNA prefers shade. A story about the sun and DNA
Scarlett and her little brother Joann are enjoying a sunny day at the beach. Joann, very focused on creating his sandcastle, forgets that the sun can be dangerous. Fortunately, Scarlett is there to...
Coronavirus loses the battle. A Story about fighting COVID-19
Coronavirus wants to conquer the world. Fortunately, Phagocyte and Lymphocyte are there to defend the...