Rare Disease Day: Discover Rare Diseases from A to Z
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We shed light on rare diseases to accelerate diagnosis
Discover howOur mission
Fondation Ipsen, under the aegis of Fondation de France, is committed to advancing rare disease detection and care, fostering innovation, and promoting social and educational initiatives. We strive for a future where all rare disease patients receives timely diagnosis, respect, and support.
Our newest books
The Rare Disease Gazette #25
In this edition, Erika Berg, PhD, hosts a conversation about Bright breakthroughs: Real stories of beating rare disease.
ADHD
Evie is creative, curious and smart. So why is it difficult for her to focus on homework, keep track of things and even finish setting the table? Evie has ADHD, which stands for attention-deficit/hyperactivity disorder.
Advancing Inclusion
Featuring a comprehensive framework for sustainable change, it equips scientific leaders, educators, leaders, and policymakers with the tools to foster diversity, equity, and belonging in STEMM fields, creating opportunities for equitable advancement.
Rare Diseases, from A to Z. Volume 2
26 letters, 26 rare diseases, 26 artworks : this alphabet book is an invitation for openness and for more recognition of rare diseases in our society. By putting words and images to these conditions, we contribute to breaking the isolation of patients and raising collective awareness.
Moon, the Little Raccoon
Every morning, Moon, a little raccoon, faces the teasing about his father’s clumsy movements, caused by a rare illness…
Venture Philantropy
This book is a translation of the NAS report on venture philanthropy. A must-read for those committed to reshaping medical research and delivering hope to millions through cutting-edge, actionable solutions.
La Dépression. Savoir quand demander de l’aide
This book is adapted from Older Adults and Depression. Knowing When to Get Help, from the National Institute of Aging at NIH.
The information it contains is based on medical research. It will help you learn more about depression. There are also tips and practical information sheets to help you recognize and treat it.
SoIn for Society and Inclusivity #3
Teaching, sharing, learning to see differently: by making disability an educational resource, we can transform mindsets. Our differences, far from being obstacles, are challenges for collective creativity.
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