Rare Disease Day: Discover Rare Diseases from A to Z
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We shed light on rare diseases to accelerate diagnosis
Discover howOur mission
Fondation Ipsen, under the aegis of Fondation de France, support projects of general interest in science, education, disability and health, with a particular focus on the early detection and care of people living with rare diseases. Fondation Ipsen strives for a future where all rare disease patients receive timely diagnosis, respect, and support.
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Our newest books
The Rare Disease Gazette #27
In this edition, Erika Berg, PhD, hosts a conversation about Redefining Connection: How young people are shaping the future of the rare disease community through technology and innovation.
Noah, the Little Panda
Noah, the little panda, loves to paint the world around him. But a rare illness is gradually taking away his sight. How can he live and keep drawing in the dark?
Little Issue #12
Little issue is a free magazine for children living in underserved communities. It contains scientific and educative activities.
Little Issue #11
Little issue is a free magazine for children living in underserved communities. It contains scientific and educative activities.
The Rare Disease Gazette #28
In this edition, Erika Berg, PhD, hosts a conversation about Bridging silos: How scientists studying rare disease are building cross-disease communities to advance research and innovation.
Uncovering Rare Disease. Volume 4
Science (American Association for the Advancement of Science) magazine, in collaboration with Fondation Ipsen, offers international scientific webinars for the general public. This special edition book compiles all of the conversations from the 2024 webinars, which are reproduced in The Rare Disease Gazette.
The Rare Disease Gazette #25
In this edition, Erika Berg, PhD, hosts a conversation about Workplace wins: Finding a fulfilling career and overcoming stigma in rare disease.
From Giving to Impact: Venture Philanthropy
Venture philanthropy is giving that works. It’s bold, structured, and built to solve real problems—not just fund them.
Venture philanthropy (VP) offers a different path. It combines the heart of philanthropy with the tools of business.
Discover our activities in 2025:
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