Rare Disease Day: Discover Rare Diseases from A to Z
Read more
We shed light on rare diseases to accelerate diagnosis
Discover howOur mission
Fondation Ipsen, under the aegis of Fondation de France, support projects of general interest in science, education, disability and health, with a particular focus on the early detection and care of people living with rare diseases. Fondation Ipsen strives for a future where all rare disease patients receive timely diagnosis, respect, and support.
Our latest stories
Fondation Ipsen at the World Orphan Drug Congress 2025
Read more
Claude Revert: Still Standing
Read more
Yamina’s Life shares patients’ voices at the Fondation Ipsen and Science webinar
Read more
More than Rare: The Journey of George
Read more
Rare Library: Rare Disease Awareness Around the World
Read more
Follow us on social media:
Our newest books
Well-Being in Rare Diseases
Living with a rare disease is not only a medical experience—it is a human one. It reaches into every part of life: the body that struggles, the mind that questions, the family that hopes, and the community that rallies. This book began with that truth and has followed it through the many ways people find comfort, meaning, and strength when medicine alone is not enough.
The Rare Disease Gazette #29
In this edition, Erika Berg, PhD, hosts a conversation about Building strength together: How rare disease caregivers form communities to support each other and their loved ones.
Little Issue #14
Little issue is a free magazine for children living in underserved communities. It contains scientific and educative activities.
Little Issue #13
Little issue is a free magazine for children living in underserved communities. It contains scientific and educative activities.
The Rare Disease Gazette #27
In this edition, Erika Berg, PhD, hosts a conversation about Redefining Connection: How young people are shaping the future of the rare disease community through technology and innovation.
Noah, the Little Panda
Noah, the little panda, loves to paint the world around him. But a rare illness is gradually taking away his sight. How can he live and keep drawing in the dark?
Little Issue #12
Little issue is a free magazine for children living in underserved communities. It contains scientific and educative activities.
Little Issue #11
Little issue is a free magazine for children living in underserved communities. It contains scientific and educative activities.
Discover our activities in 2025:
Any questions?
Contact Us