🧩 “Sometimes, getting the diagnosis doesn’t actually give you more answers – it just gives you more questions”
🎙️ During an interview with our president , Dr. James Levine, at the UCSF Rare Disease Symposium, Dr. David Fajgenbaum shared his journey with Castleman disease and the uncertainties that come with being diagnosed with a rare disease. His story underscores the challenges patients face when there’s limited information and few treatment options available.