Science
The Rare Disease Gazette #17
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Closing the funding gap.
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Science
Developed through collaborations between experts, artists, and authors, our publications—available for all ages and in multiple languages—focus on education and raising awareness about health, disability, and rare diseases.
To ensure they remain free, our printed books are now distributed exclusively through our partners, as well as a network of teachers and public libraries. All of our publications are still available free of charge in digital format via the buttons on each book’s page.
Science
The Rare Disease Gazette #20 SPECIAL EDITION
In this special edition, Erika Berg, PhD, hosts a Fireside Chat about the intersection between the FDA and rare disease, with Robert M. Califf, Commissioner of Food and Drugs at the United States Food and Drug Administration (FDA).
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Science
Living with a Rare Disease Worldwide. Volume 2
This free book, made in collaboration with the National Press Foundation, gathers press articles on people living with a rare disease accross the globe.
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Science
The Rare Disease Gazette #16
In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts on crafting the public narrative.
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Science
The Rare Disease Gazette #15
In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts to survey the landscape.
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Science
Artificial Intelligence in Science
The book, written by OECD, examines various topics, including the current, emerging, and potential future uses of AI in science.
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Science
Uncovering Rare Disease. Volume 2
This special edition gathers all the conversations with the experts invited during our 2022 webinars (diagnosis, treatment and advocacy in rare disease).
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Science
The Rare Disease Gazette #14
In this Rare Disease Gazette, some of the world’s leading experts discussed about the profoundly personal side of rare disease, to humanize the therapeutic journey of patients.
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Science
Promising Practices
This report includes findings, conclusions and recommendations for adressing gender parity in Science and Medecine
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Science
Rare Diseases, from A to Z. Volume 1
This new and free alphabet book invites to discover the diversity and variability of rare diseases. 26 letters, 26 rare diseases.
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Science
The Rare Disease Gazette #13
In this new issue, international scientists discuss the need to internationalize databases and patient registries for rare diseases.
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Science
The Rare Disease Gazette #11
In this new issue, some of the world’s leading experts in rare diseases discuss personalized therapies.
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