Science
The Rare Disease Gazette #18
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Working the regulatory angle.
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Science
The Rare Disease Gazette #17
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Closing the funding gap.
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Science
The Rare Disease Gazette #20 SPECIAL EDITION
In this special edition, Erika Berg, PhD, hosts a Fireside Chat about the intersection between the FDA and rare disease, with Robert M. Califf, Commissioner of Food and Drugs at the United States Food and Drug Administration (FDA).
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Science
Living with a Rare Disease Worldwide. Volume 2
This free book, made in collaboration with the National Press Foundation, gathers press articles on people living with a rare disease accross the globe.
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Science
The Rare Disease Gazette #16
In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts on crafting the public narrative.
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Science
The Rare Disease Gazette #15
In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts to survey the landscape.
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Science
Artificial Intelligence in Science
The book, written by OECD, examines various topics, including the current, emerging, and potential future uses of AI in science.
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Science
Uncovering Rare Disease. Volume 2
This special edition gathers all the conversations with the experts invited during our 2022 webinars (diagnosis, treatment and advocacy in rare disease).
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Science
The Rare Disease Gazette #14
In this Rare Disease Gazette, some of the world’s leading experts discussed about the profoundly personal side of rare disease, to humanize the therapeutic journey of patients.
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Science
Promising Practices
This report includes findings, conclusions and recommendations for adressing gender parity in Science and Medecine
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Science
Rare Diseases, from A to Z. Volume 1
This new and free alphabet book invites to discover the diversity and variability of rare diseases. 26 letters, 26 rare diseases.
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Science
The Rare Disease Gazette #13
In this new issue, international scientists discuss the need to internationalize databases and patient registries for rare diseases.
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