Science

Uncovering Rare Disease. Volume 3

Science (American Association for the Advancement of Science) magazine, in collaboration with Fondation Ipsen, offers international scientific webinars for the general public. In 2023, these webinars focused on advocacy in rare diseases.

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Science

The Rare Disease Gazette #21

In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Driving Advances in Technology.

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Science

Les Fentes de A à Z

A digital dictionary has been developed by the Center of Reference for Clefts and Facial Malformations (MAFACE).

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Science

The Rare Disease Gazette #19

In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Taking care of caregivers.

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Science

The Rare Disease Gazette #18

In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Working the regulatory angle.

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Science

The Rare Disease Gazette #17

In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Closing the funding gap.

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Science

The Rare Disease Gazette #20 SPECIAL EDITION

In this special edition, Erika Berg, PhD, hosts a Fireside Chat about the intersection between the FDA and rare disease, with Robert M. Califf, Commissioner of Food and Drugs at the United States Food and Drug Administration (FDA).

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Science

Living with a Rare Disease Worldwide. Volume 2

This free book, made in collaboration with the National Press Foundation, gathers press articles on people living with a rare disease accross the globe.

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Science

The Rare Disease Gazette #16

In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts on crafting the public narrative.

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Science

The Rare Disease Gazette #15

In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts to survey the landscape.

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Science

Artificial Intelligence in Science

The book, written by OECD, examines various topics, including the current, emerging, and potential future uses of AI in science.

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Science

Uncovering Rare Disease. Volume 2

This special edition gathers all the conversations with the experts invited during our 2022 webinars (diagnosis, treatment and advocacy in rare disease).

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