Rare but not alone
Accelerate rare disease diagnosis
There are 7,000 rare diseases affecting 300 million people worldwide. 75% of patients are children. 1 in 2 patients does not have an accurate diagnosis. A quarter of patients wait 4 years to get a diagnosis. Our program brings together world experts to improve this dire situation.
Come and check it out!
Fondation Ipsen brings you a variety of content to help advance rare disease detection. Browse our webinars, videos, podcasts and educational courses to discover cutting-edge science and meet world experts. Discover educational stories with your children, join us on a historical journey, and advocate to improve the lives of patients.
Books for all
Fondation Ipsen’s publishing house publishes books for all ages. Pick a book. It’s free !
At night, when the whole burrow is peacefully asleep, Charlotte, the little groundhog, is all excited. Mama Marmotte’s gentle lullabies do nothing, and the days that follow are tough…