Rare Diseases
Rare but not alone
Mission
Accelerate rare disease diagnosis
There are 7,000 rare diseases affecting 300 million people worldwide. 75% of patients are children. 1 in 2 patients does not have an accurate diagnosis. A quarter of patients wait 4 years to get a diagnosis. Our program brings together world experts to improve this dire situation.
We put
patients
first
Digital Platform
Come and check it out!
Fondation Ipsen brings you a variety of content to help advance rare disease detection. Browse our webinars, videos, podcasts and educational courses to discover cutting-edge science and meet world experts. Discover educational stories with your children, join us on a historical journey, and advocate to improve the lives of patients.
BookLab
Books for all
Fondation Ipsen’s publishing house publishes books for all ages. Pick a book. It’s free !
What's new?
Charlotte, the Little Woodchuck
At night, when the whole burrow is peacefully asleep, Charlotte, the little groundhog, is all excited. Mama Marmotte’s gentle lullabies do nothing, and the days that follow are tough…
Hercule, the Little Bubble Fish
Hercules, the little fish, lives in a bubble. No one dares venture too close, and Hercules remains alone, isolated from the wickedness that surrounds him…
Willi, the Little Grizzly
A lonely little grizzly, Willi is getting ready for his first day at school. But doors are closing in his face…