Webinar – Keys to success: Unlocking health care access for rare disease
This webinar aims to share insights, experiences, and best practices in navigating the complexities of health care systems to ensure equitable access for rare disease...
Webinar – Standing out in the storm: Caregiving in rare disease
This webinar aims to provide caregivers with valuable knowledge and strategies to navigate the complexities of caregiving in the context of rare...
Webinar – Blooming against odds: Successfully navigating mental health in rare disease
The discussion aims to empower individuals with rare diseases to not only survive but thrive in their journey towards mental health and...
Webinar – Advocacy in rare disease: Taking Care of Caregivers
In this panel discussion, participants will explore advocacy efforts aimed at easing the burden of caregiving for rare...
Webinar – Advocacy in rare disease: Driving Technology Advances
In this panel discussion, participants will discuss how technology advancements could bring new...
Webinar – Advocacy in rare disease: A Fireside Chat with the U.S. Commissioner of Food and Drugs
In this fireside chat with the FDA commissioner, viewers will learn more about the FDA’s commitment to addressing rare diseases and how they incentivize the development of...
Webinar – Advocacy in rare disease: Working the Regulatory Angle
In this panel discussion, participants will discuss how to navigate the notoriously complex regulatory...
Webinar – Advocacy in rare disease: Closing the funding gap
In this panel discussion, participants will discuss how closing the funding gap in rare diseases requires a multi-faceted...
Webinar – Advocacy in rare disease: Crafting the public narrative
In this webinar, we invited experts in communication, public relations, and influencing to discuss strategies and tactics to advance advocacy for rare...
Webinar – Advocacy in rare disease: Surveying the landscape
In this first webinar (free) in the 2023 series on advocacy in rare disease, we examine the advocacy landscape : advocates, organizations, resources,...
Webinar – Humanizing the support of patients living with a Rare Disease
For this last 2022 webinar, our guests will share ideas on how to improve the humanistic support of patients with rare diseases and their...
Webinar – The urgent need to internationalize databases for rare disease patients
This webinar will interrogate global experts on how to drive international databases for helping patients living with a rare disease...
Webinar – Bringing Rare Disease care to underserved populations
This new free webinar will discuss how new systems and technologies can help those with rare diseases living in underserved countries and...
Webinar – Personalized therapies in rare disease
During this free webinar, with Science magazine, the experts will debate on the interest of personalized medicine for trzating rare...
Webinar – Combating the fragmentation of data and disciplines: Innovation hubs to address rare diseases
This webinar brings together key opinion leaders to discuss the current and future needs of patients, and how innovators, doctors, scientists, drugmakers, and policymakers can work efficiently...
Webinar – Reimagining rare disease detection: Who needs to be at the table?
For our new free webinar with Science Magazine, our panel will tackle issues regarding rare disease detection and...
Webinar – Uniquely singular: Exploring what it means to be rare
In the final webinar in our 2021 series on rare diseases, we will debate on the importance of understanding our rarity and...
Webinar – What’s the plan? From detection to diagnosis to treatment of rare diseases
In this webinar, we will discuss strategies for finding new treatments for rare diseases and how these solutions might be...
Webinar: The psychological cost of rare disease
In this webinar, we will address how the medical community can better support those living with a rare disease as well as their...
Webinar: Finding rare diseases in common places
In this webinar, our experts will discuss strategies for implementing broad rare disease detection across all doctor–patient...
Webinar: Intelligent detection and diagnosis of rare diseases
In this webinar, the experts will discuss how AI comb through thousands of medical records to detect both known and new rare...
Webinar: Neonatal testing for rare diseases
During this webinar, the experts will debate about the pros and cons of neonatal (and prenatal) testing for rare...
Webinar: Detecting rare disease
This webinar examined the benefits and limitations of genetic testing, recent advances, and new technologies (artificial intelligence) which might help uncover hidden rare...
Webinar: The poor diagnosis of rare diseases
The second 2021 webinar with Science Magazine is dedicated to the issues caused by the poor diagnosis of rare...
7,000 challenges: the basis and burden of rare diseases
Join our expert panel invited to this webinar who will explain the basis and burden of rare diseases and offer a path...
Mistakes, missteps, and lessons learned: How we stop the coronavirus
This webinar accesses some of the world’s leading scientists to explain what seems to be a never-ending list of challenges to stop Covid-19...
Vaccine matters: Can we cure coronavirus?
During this exceptional webinar, the experts, all in the field of coronavirus vaccine research, will respond to the public’s most pressing...
Coronavirus: A survival guide
This new and exceptional webinar will be focused on the Coronavirus outbreak, which has made us completely change our modern behaviors. We’ll discuss how to adapt to the new normal and how to face...
Fiscal fitness for scientists: The price you pay for ignorance
The financial pressures of being a scientist are not limited to youngsters—with tenure becoming more difficult and likely to disappear, many more senior scientists have little or no financial...
The science of incarceration: A realistic look at the cost of imprisonment
In this webinar, the expert panel will tackle incarceration and examine how society’s need for redress can be balanced with our moral obligation to treat all human beings with respect and...
From grassroots to 30,000 feet: A discussion on the fate of graduate education
This webinar draws together educational visionaries to conjecture the future of higher education and its impact on science learning and...
Money matters: Science entrepreneurship
Entrepreneurship is a major source of scientific advancement as well as a mechanism for gaining personal wealth. How should we best handle entrepreneurship in science? Join the...
Engaging citizen scientists: Will the walls of the ivory towers come tumbling down?
For more than 200 years, however, Science has been conducted only by scientists, but now, citizen scientists have been engaged to measure bird migration, the proliferation of plastics pollution, and...
Impulses, intent, and the science of evil
In this webinar we examine the science of evil. We attempt to unpack the nature of evil and ask if we can eliminate it or whether indeed, we...
You can’t think outside the box if you’re locked inside it
During this webinar, we will identify solutions to better represent the ideas, countries, wealth variances, cultures, identities, and beliefs in the global laboratory of the...
Weaponizing science for the greater good
This webinar examines the practice of applying scientific standards of data collection, analysis, and presentation to further social justice and serve core human...
Selling without selling out: How to communicate your science
This webinar provides guidance on how to best communicate science to your peers and the...
Unmasking mental health issues faced by scientists: Addressing the silent pain among us
This webinar seeks to address the issue of mental health in the scientific community candidly and...
Fighting fake science: Barriers and solutions
This webinar attacks the issue of fake science head-on, examining what can be done to combat bad science and how good science can be encouraged and...
Put talent first: Practical steps to eliminate gender bias in science
This live roundtable discussion addressed the continuing problem of gender-based discrimination in the...
Finding your way: The science of success
This Webinar adressed what success means and what we might consider sacrificing or risking to reach our goals in Scientific...