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Rare Disease Discovery: Innovations in Diagnostics and Therapeutics
The UCSF Catalyst Program, with Fondation Ipsen, welcomes you to a one-day virtual rare disease symposium with a focus on the interdisciplinary development of new diagnostics, new therapeutics and social advances for patients and families
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Accelarating the dissemination of knowledge on rare disease
This program aims to develop Orphanet’s rare disease ecosystem knowledge base and producing the rare disease community’s newsletter, OrphaNews International
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Improve visibility of patients living with a rare disease
This complete program focused on patients living with a rare disease is carried out in collaboration with Eurordis, the european non-profit alliance of 984 rare disease patient organisations from 74 countries.
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UNESCO Science Report
Fondation Ipsen and UNESCO partnered for the publication of the Science report "A race against time for a smarter development".
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New manga book series: Athletes living with disabilities
Our new series of manga books will focus on athletes living with disabilities and highlight their lives as top ranking athletes.
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Science Webinars: rare disease diagnosis
These international webinars gather the world's leading scientists to discuss how to improve rare disease detection.
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Reaching children in underserved communities
Little Issue is a free magazine distributed in underserved communities to raise awareness about health issues.
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Engaging journalists to report about rare diseases
Gathering journalists, patients and experts to raise awareness about rare disease detection.
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Children’s books on rare diseases
A professional artist collaborates with pediatric patients to bring their experiences to life.
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Patient advocacy groups
Fondation Ipsen offers micro-grants to patient advocacy groups to help them promote their mission.
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Rare disease: Needs assessment
We do not know the answers, and so we are asking the rare disease community what it needs.