Vidéo Rare Care: how new medicines are made 🔬 Developing and funding treatments for rare diseases present distinct challenges that traditional funding models often can’t address. With small patient populations, high research costs, and limited commercial incentives, innovation for rare disease requires new approaches. 🙌 Filmed at UC San Diego during the… Read more
Vidéo Behind the scene of “Je suis autiste… et alors?” 📚 Go behind the scenes of the book “I’m Autistic… So What?” 👉A powerful and uplifting testimony about autism, available for free in both digital and print versions. 🎙️ At just 26 years old, Maxime Vindrier has established himself as a vital voice in autism awareness. Diagnosed at age… Read more
Vidéo A Conversation with Teri Wiley, Managing Director at Pathways to Cures At LaunchBio’s Invest in Cures Event in San Diego, Teri Wiley, Partners, Managing Director at Pathways to Cures shared important insights on venture philanthropy in the context of bleeding disorders. … Read more
Vidéo Understanding gene therapy for rare diseases During our conversation with Dr. Stephanie Cherqui at the Invest in Cures event by LaunchBio, we explored the transformative impact of gene therapy in treating genetic disorders, especially rare diseases. Meet Dr. Stephanie Cherqui Dr. Cherqui is a professor at the University of… Read more
Vidéo Rare Disease Conversations Series of 5 short free conferences on rare disease : accelerating diagnosis and the development of innovative treatments Read more
Vidéo Rare Disease : Innovations in Diagnostics and Therapeutics (part 3) : Sickle Cell Disease A series of 2 conferences on Innovation in diagnostics and therapeutics in Sickle Cell Disease and Rare Disease, a symposium organized by UCSF Innovation Ventures. Read more
Vidéo Rare Disease : Innovations in Diagnostics and Therapeutics (part 2) Discover a second cycle of free conferences on diagnostic and therapeutic innovations on Rare Diseases. For patients, families and caregivers. Read more
Vidéo Rare Disease : Innovations in Diagnostics and Therapeutics (part 1) Discover a first cycle of 4 free conferences on Innovation and therapeutics in rare disease. This conference was organized by Fondation Ipsen and UCSF. Read more
Vidéo MOOC program with Institut Pasteur Fondation Ipsen and Institut Pasteur are partners for the development of a training program, through MOOCs, on infectious diseases. A certificate will given to participants after the validation of the final examination. Read more