Media

Vidéo

Dans les coulisses de “Je suis autiste… et alors?”

📚 Plongez dans les coulisses du livre Je suis autiste… et alors ? 👉Un témoignage fort et lumineux sur l’autisme, disponible gratuitement en version numérique et imprimée : https://www.fondation-ipsen.org/fr/bo… 🎙️ À seulement 26 ans, Maxime Vindrier…

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Vidéo

A Conversation with Teri Wiley, Managing Director at Pathways to Cures

At LaunchBio’s Invest in Cures Event in San Diego, Teri Wiley, Partners, Managing Director at Pathways to Cures shared important insights on venture philanthropy in the context of bleeding disorders.  …

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Vidéo

Understanding gene therapy for rare diseases

During our conversation with Dr. Stephanie Cherqui at the Invest in Cures event by LaunchBio, we explored the transformative impact of gene therapy in treating genetic disorders, especially rare diseases. Meet Dr. Stephanie Cherqui Dr. Cherqui is a professor at the University of…

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Webinar

Keys to success: Unlocking health care access for rare disease

This webinar aims to share insights, experiences, and best practices in navigating the complexities of health care systems to ensure equitable access for rare disease patients

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Webinar

Standing out in the storm: Caregiving in rare disease

This webinar aims to provide caregivers with valuable knowledge and strategies to navigate the complexities of caregiving in the context of rare diseases.

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Webinar

Blooming against odds: Successfully navigating mental health in rare disease

The discussion aims to empower individuals with rare diseases to not only survive but thrive in their journey towards mental health and well-being.

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Webinar

Advocacy in rare disease: Taking Care of Caregivers

In this panel discussion, participants will explore advocacy efforts aimed at easing the burden of caregiving for rare diseases.

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Webinar

Advocacy in rare disease: Driving Technology Advances

In this panel discussion, participants will discuss how technology advancements could bring new therapies.

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Webinar

Advocacy in rare disease: Working the Regulatory Angle

In this panel discussion, participants will discuss how to navigate the notoriously complex regulatory angle

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Webinar

Advocacy in rare disease: Closing the funding gap

In this panel discussion, participants will discuss how closing the funding gap in rare diseases requires a multi-faceted approach.

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Podcast

The story of the Royal Hotel of Invalides

Discover our new series of podcast dedicated on the Royal Hotel of Invalides (Paris) which was the first institution created to care for wounded soldiers

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Vidéo

Rare Disease Conversations

Series of 5 short free conferences on rare disease : accelerating diagnosis and the development of innovative treatments

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