The Rare Disease Gazette#22
In this edition, Erika Berg, PhD, hosts a conversation about Blooming against odds: Successfully navigating mental health in rare...
Uncovering Rare Disease. Volume 3
Science (American Association for the Advancement of Science) magazine, in collaboration with Fondation Ipsen, offers international scientific webinars for the general public. In 2023, these webinars...
The Rare Disease Gazette#21
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Driving Advances in...
The Rare Disease Gazette#19
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Taking care of...
The Rare Disease Gazette#18
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Working the regulatory...
The Rare Disease Gazette#17
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Closing the funding...
The Rare Disease Gazette#20 SPECIAL EDITION
In this special edition, Erika Berg, PhD, hosts a Fireside Chat about the intersection between the FDA and rare disease, with Robert M. Califf, Commissioner of Food and Drugs at the United States...
The Rare Disease Gazette#16
In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts on crafting the public...
The Rare Disease Gazette #15
In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts to survey the...
Uncovering Rare Disease. Volume 2
This special edition gathers all the conversations with the experts invited during our 2022 webinars (diagnosis, treatment and advocacy in rare disease)....
The Rare Disease Gazette #14
In this Rare Disease Gazette, some of the world’s leading experts discussed about the profoundly personal side of rare disease, to humanize the therapeutic journey of...
The Rare Disease Gazette #13
In this new issue, international scientists discuss the need to internationalize databases and patient registries for rare...
The Rare Disease Gazette #11
In this new issue, some of the world’s leading experts in rare diseases discuss personalized...
The Rare Disease Gazette #12
In this Rare Disease Gazette, experts discuss how patients living with a rare disease in underserved communities can benefit from medical...
Uncovering Rare Disease. Volume 1
In this special edition, AAAS/Science Magazine has compiled all of the conversations published in 2021 in The Rare Disease...
The Rare Disease Gazette #10
In this Rare Disease Gazette, experts invited by Fondation Ipsen discuss the fragmentation of data and...
The Rare Disease Gazette #9
In this Rare Disease Gazette, our experts re-imagine rare disease detection and you can discover the history of the Human Genome...
The Rare Disease Gazette #8
In this new Rare Disease Gazette, we discuss future pathways, from detection to diagnosis to treatment of rare diseases....
The Rare Disease Gazette #7
In this rare disease gazette, some of the world’s leading experts discuss the role of primary care in detection and diagnosis of rare...
The Rare Disease Gazette #6
In this 6th Rare Disease Gazette, find a discussion with leading experts on the psychological cost of rare disorders for patients, families and...
The Rare Disease Gazette #5
In this issue of our "Rare Disease Gazette", discover a discussion on Artificial Intelligence, which may help rare disease...
The Rare Disease Gazette #4
In this rare disease gazette, experts discuss neonatal testing for rare diseases and discover the history of Rosalind...
The Rare Disease Gazette #3
In this issue of the "Rare Disease Gazette", Fondation Ipsen invited experts to debate on the detection of rare diseases....
The Rare Disease Gazette #2
In this new issue, find a conversation with some of the world’s experts on rare disease diagnosis and the history of...
