Science
- Home
- Science
The Rare Disease Gazette#21
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Driving Advances in...
Les Fentes de A à Z
A digital dictionary has been developed by the Center of Reference for Clefts and Facial Malformations...
The Rare Disease Gazette#19
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Taking care of...
The Rare Disease Gazette#18
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Working the regulatory...
The Rare Disease Gazette#17
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Closing the funding...
The Rare Disease Gazette#20 SPECIAL EDITION
In this special edition, Erika Berg, PhD, hosts a Fireside Chat about the intersection between the FDA and rare disease, with Robert M. Califf, Commissioner of Food and Drugs at the United States...
Living with a Rare Disease Worldwide. Volume 2
This free book, made in collaboration with the National Press Foundation, gathers press articles on people living with a rare disease accross the...
The Rare Disease Gazette#16
In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts on crafting the public...
The Rare Disease Gazette #15
In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts to survey the...
Artificial Intelligence in Science
The book, written by OECD, examines various topics, including the current, emerging, and potential future uses of AI in...
Uncovering Rare Disease. Volume 2
This special edition gathers all the conversations with the experts invited during our 2022 webinars (diagnosis, treatment and advocacy in rare disease)....
The Rare Disease Gazette #14
In this Rare Disease Gazette, some of the world’s leading experts discussed about the profoundly personal side of rare disease, to humanize the therapeutic journey of...
Promising Practices
This report includes findings, conclusions and recommendations for adressing gender parity in Science and...
Rare Diseases, from A to Z
This new and free alphabet book invites to discover the diversity and variability of rare diseases. 26 letters, 26 rare...
The Rare Disease Gazette #13
In this new issue, international scientists discuss the need to internationalize databases and patient registries for rare...
The Rare Disease Gazette #11
In this new issue, some of the world’s leading experts in rare diseases discuss personalized...
Disability: affectivity, sexuality and dignity
Discover our new free book on disability. This book addresses sensitive questions to reflect constructively on...
The Rare Disease Gazette #12
In this Rare Disease Gazette, experts discuss how patients living with a rare disease in underserved communities can benefit from medical...
Uncovering Rare Disease. Volume 1
In this special edition, AAAS/Science Magazine has compiled all of the conversations published in 2021 in The Rare Disease...
The Rare Disease Gazette #10
In this Rare Disease Gazette, experts invited by Fondation Ipsen discuss the fragmentation of data and...
Deciphering the difference
This scientific and historical book explains how people with disabilities lived in the past and invites us to build more inclusive...
The Rare Disease Gazette #9
In this Rare Disease Gazette, our experts re-imagine rare disease detection and you can discover the history of the Human Genome...
Living with a Rare Disease Worldwide. Volume 1
This free book, made in collaboration with the National Press Foundation, gathers press articles on people living with a rare disease accross the...
The Rare Disease Gazette #8
In this new Rare Disease Gazette, we discuss future pathways, from detection to diagnosis to treatment of rare diseases....
The Rare Disease Gazette #7
In this rare disease gazette, some of the world’s leading experts discuss the role of primary care in detection and diagnosis of rare...
The Rare Disease Gazette #6
In this 6th Rare Disease Gazette, find a discussion with leading experts on the psychological cost of rare disorders for patients, families and...
The Rare Disease Gazette #5
In this issue of our "Rare Disease Gazette", discover a discussion on Artificial Intelligence, which may help rare disease...
The Rare Disease Gazette #4
In this rare disease gazette, experts discuss neonatal testing for rare diseases and discover the history of Rosalind...
The Rare Disease Gazette #3
In this issue of the "Rare Disease Gazette", Fondation Ipsen invited experts to debate on the detection of rare diseases....
The Rare Disease Gazette #2
In this new issue, find a conversation with some of the world’s experts on rare disease diagnosis and the history of...
Story of poliomyelitis
From the first traces in ancient Egypt, to the discovery of vaccines and modern regulations, Florian Delval traces the history of polio, a history rich in discoveries and twists and...
Early rehabilitation
This is a translation from English of the guide Early Rehabilitation in Conflicts and Disasters published by Humanity Inclusion in January...
Sexual harassment of women
This book is a translation of the NAS report on sexual harassment of women in academic...