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Uncovering Rare Disease. Volume 3
Science (American Association for the Advancement of Science) magazine, in collaboration with Fondation Ipsen, offers international scientific webinars for the general public. In 2023, these webinars...
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The Rare Disease Gazette#21
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Driving Advances in...
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Les Fentes de A à Z
A digital dictionary has been developed by the Center of Reference for Clefts and Facial Malformations...
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The Rare Disease Gazette#19
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Taking care of...
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The Rare Disease Gazette#18
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Working the regulatory...
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The Rare Disease Gazette#17
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Closing the funding...
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The Rare Disease Gazette#20 SPECIAL EDITION
In this special edition, Erika Berg, PhD, hosts a Fireside Chat about the intersection between the FDA and rare disease, with Robert M. Califf, Commissioner of Food and Drugs at the United States...
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Living with a Rare Disease Worldwide. Volume 2
This free book, made in collaboration with the National Press Foundation, gathers press articles on people living with a rare disease accross the...
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The Rare Disease Gazette#16
In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts on crafting the public...
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The Rare Disease Gazette #15
In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts to survey the...
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Artificial Intelligence in Science
The book, written by OECD, examines various topics, including the current, emerging, and potential future uses of AI in...
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Uncovering Rare Disease. Volume 2
This special edition gathers all the conversations with the experts invited during our 2022 webinars (diagnosis, treatment and advocacy in rare disease)....
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The Rare Disease Gazette #14
In this Rare Disease Gazette, some of the world’s leading experts discussed about the profoundly personal side of rare disease, to humanize the therapeutic journey of...
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Promising Practices
This report includes findings, conclusions and recommendations for adressing gender parity in Science and...
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Rare Diseases, from A to Z
This new and free alphabet book invites to discover the diversity and variability of rare diseases. 26 letters, 26 rare...
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The Rare Disease Gazette #13
In this new issue, international scientists discuss the need to internationalize databases and patient registries for rare...
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The Rare Disease Gazette #11
In this new issue, some of the world’s leading experts in rare diseases discuss personalized...
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Disability: affectivity, sexuality and dignity
Discover our new free book on disability. This book addresses sensitive questions to reflect constructively on...
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The Rare Disease Gazette #12
In this Rare Disease Gazette, experts discuss how patients living with a rare disease in underserved communities can benefit from medical...
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Uncovering Rare Disease. Volume 1
In this special edition, AAAS/Science Magazine has compiled all of the conversations published in 2021 in The Rare Disease...
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The Rare Disease Gazette #10
In this Rare Disease Gazette, experts invited by Fondation Ipsen discuss the fragmentation of data and...
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Deciphering the difference
This scientific and historical book explains how people with disabilities lived in the past and invites us to build more inclusive...
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The Rare Disease Gazette #9
In this Rare Disease Gazette, our experts re-imagine rare disease detection and you can discover the history of the Human Genome...
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Living with a Rare Disease Worldwide. Volume 1
This free book, made in collaboration with the National Press Foundation, gathers press articles on people living with a rare disease accross the...
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The Rare Disease Gazette #8
In this new Rare Disease Gazette, we discuss future pathways, from detection to diagnosis to treatment of rare diseases....
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The Rare Disease Gazette #7
In this rare disease gazette, some of the world’s leading experts discuss the role of primary care in detection and diagnosis of rare...
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The Rare Disease Gazette #6
In this 6th Rare Disease Gazette, find a discussion with leading experts on the psychological cost of rare disorders for patients, families and...
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The Rare Disease Gazette #5
In this issue of our "Rare Disease Gazette", discover a discussion on Artificial Intelligence, which may help rare disease...
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The Rare Disease Gazette #4
In this rare disease gazette, experts discuss neonatal testing for rare diseases and discover the history of Rosalind...
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The Rare Disease Gazette #3
In this issue of the "Rare Disease Gazette", Fondation Ipsen invited experts to debate on the detection of rare diseases....
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The Rare Disease Gazette #2
In this new issue, find a conversation with some of the world’s experts on rare disease diagnosis and the history of...
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The Rare Disease Gazette #1
Discover the first issue of the Rare Disease...
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Story of poliomyelitis
From the first traces in ancient Egypt, to the discovery of vaccines and modern regulations, Florian Delval traces the history of polio, a history rich in discoveries and twists and...
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Prosthesis
The long history of prosthesis is inextricably linked to the history of...
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Early rehabilitation
This is a translation from English of the guide Early Rehabilitation in Conflicts and Disasters published by Humanity Inclusion in January...
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Sexual harassment of women
This book is a translation of the NAS report on sexual harassment of women in academic...