Science
The Rare Disease Gazette #25
In this edition, Erika Berg, PhD, hosts a conversation about Bright breakthroughs: Real stories of beating rare disease.
Read more
Science
Advancing Inclusion
Featuring a comprehensive framework for sustainable change, it equips scientific leaders, educators, leaders, and policymakers with the tools to foster diversity, equity, and belonging in STEMM fields, creating opportunities for equitable advancement.
Read more
Science
Rare Diseases, from A to Z. Volume 2
26 letters, 26 rare diseases, 26 artworks : this alphabet book is an invitation for openness and for more recognition of rare diseases in our society. By putting words and images to these conditions, we contribute to breaking the isolation of patients and raising collective awareness.
Read more
Science
Venture Philantropy
This book is a translation of the NAS report on venture philanthropy. A must-read for those committed to reshaping medical research and delivering hope to millions through cutting-edge, actionable solutions.
Read more
Science
The Rare Disease Gazette #24
In this edition, Erika Berg, PhD, hosts a conversation about Keys to success: Unlocking health care access for rare disease.
Read more
Science
The Rare Disease Gazette #23
In this edition, Erika Berg, PhD, hosts a conversation about Standing out in the storm: Caregiving in rare disease
Read more
Science
The Rare Disease Gazette #22
In this edition, Erika Berg, PhD, hosts a conversation about Blooming against odds: Successfully navigating mental health in rare disease.
Read more
Science
Living with a Rare Disease Worldwide. Volume 3
This free book, made in collaboration with the National Press Foundation, gathers press articles on people living with a rare disease accross the globe.
Read more
Science
Uncovering Rare Disease. Volume 3
Science (American Association for the Advancement of Science) magazine, in collaboration with Fondation Ipsen, offers international scientific webinars for the general public. In 2023, these webinars focused on advocacy in rare diseases.
Read more
Science
The Rare Disease Gazette #21
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Driving Advances in Technology.
Read more
Science
Les Fentes de A à Z
A digital dictionary has been developed by the Center of Reference for Clefts and Facial Malformations (MAFACE).
Read more
Science
The Rare Disease Gazette #19
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Taking care of caregivers.
Read more
