International

A Historic Turning Point for Rare Diseases and Youth Engagement At the 77th World Health Assembly (WHA) in Geneva, we stood at the heart of two defining moments for the global rare disease community: the first in-person gathering of the Youth Leadership Programme (YLP), and the historic adoption…

International Women’s Rights Day: Explore Rosalind Franklin’s History On International Women’s Rights Day, we are delighted to present our podcast Rosalind Franklin, Quelle(s) Histoire(s)! Part of our ‘Science, Quelle(s) histoire(s)’ series, this episode explore the journey and challenges of a woman scientist in the mid-20ᵉ century. You will…

Our president Dr James Levine shared insights on innovative funding mechanisms for rare diseases at the World Orphan Drug Congress Europe.