Books

To promote awareness of rare diseases from an early age, the Rare Library project aims to make illustrated books accessible in multiple languages for children around the world. This collaborative initiative relies on a network of national patient alliances to ensure that each book is culturally adapted and…

“My name is Maxime Vindrier, I’m 26, and I’m autistic. I have tons of passions I could talk about endlessly—but we’ll get to that later. What really gets to me are all the clichés and false ideas about autism. Honestly, sometimes I just want to…

Publication of the second volume of Rare Diseases from A to Z For the Rare Disease Day, we’re proud to announce the publication of the second volume of Rare Diseases from A to Z! Developed in collaboration with the Rare Disease Expertise Platform of Bourgogne-Franche-Comté (PEMR-BFC), this book raises awareness…

Discover powerful stories in our new collection of articles: Living with a Rare Disease Worldwide. Volume 3

It was a privilege to meet the inspiring writers and caregivers as they shared their powerful stories of resilience and love during an event to launch the book.