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The Rare Disease Gazette

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The Rare Disease Gazette#21

In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Driving Advances in...

The Rare Disease Gazette#19

In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Taking care of...

The Rare Disease Gazette#18

In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Working the regulatory...

The Rare Disease Gazette#17

In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Closing the funding...

The Rare Disease Gazette#20 SPECIAL EDITION

In this special edition, Erika Berg, PhD, hosts a Fireside Chat about the intersection between the FDA and rare disease, with Robert M. Califf, Commissioner of Food and Drugs at the United States...

The Rare Disease Gazette#16

In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts on crafting the public...

The Rare Disease Gazette #15

In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts to survey the...

Uncovering Rare Disease. Volume 2

This special edition gathers all the conversations with the experts invited during our 2022 webinars (diagnosis, treatment and advocacy in rare disease)....

The Rare Disease Gazette #14

In this Rare Disease Gazette, some of the world’s leading experts discussed about the profoundly personal side of rare disease, to humanize the therapeutic journey of...

The Rare Disease Gazette #13

In this new issue, international scientists discuss the need to internationalize databases and patient registries for rare...

The Rare Disease Gazette #11

In this new issue, some of the world’s leading experts in rare diseases discuss personalized...

The Rare Disease Gazette #12

In this Rare Disease Gazette, experts discuss how patients living with a rare disease in underserved communities can benefit from medical...

Uncovering Rare Disease. Volume 1

In this special edition, AAAS/Science Magazine has compiled all of the conversations published in 2021 in The Rare Disease...

The Rare Disease Gazette #10

In this Rare Disease Gazette, experts invited by Fondation Ipsen discuss the fragmentation of data and...

The Rare Disease Gazette #9

In this Rare Disease Gazette, our experts re-imagine rare disease detection and you can discover the history of the Human Genome...

The Rare Disease Gazette #8

In this new Rare Disease Gazette, we discuss future pathways, from detection to diagnosis to treatment of rare diseases....

The Rare Disease Gazette #7

In this rare disease gazette, some of the world’s leading experts discuss the role of primary care in detection and diagnosis of rare...

The Rare Disease Gazette #6

In this 6th Rare Disease Gazette, find a discussion with leading experts on the psychological cost of rare disorders for patients, families and...

The Rare Disease Gazette #5

In this issue of our "Rare Disease Gazette", discover a discussion on Artificial Intelligence, which may help rare disease...

The Rare Disease Gazette #4

In this rare disease gazette, experts discuss neonatal testing for rare diseases and discover the history of Rosalind...

The Rare Disease Gazette #3

In this issue of the "Rare Disease Gazette", Fondation Ipsen invited experts to debate on the detection of rare diseases....

The Rare Disease Gazette #2

In this new issue, find a conversation with some of the world’s experts on rare disease diagnosis and the history of...

The Rare Disease Gazette #1

Discover the first issue of the Rare Disease...
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