Books

Developed through collaborations between experts, artists, and authors, our publications—available for all ages and in multiple languages—focus on education and raising awareness about health, disability, and rare diseases. To ensure they remain free, our printed books are now distributed exclusively through our partners, as well as a network of teachers and public libraries. All of our publications are still available free of charge in digital format via the buttons on each book’s page.

Image for Ma Différence, ma force

Ma Différence, ma force

“Being different doesn’t mean being less.” In this intimate and inspiring story, Blandine shares her journey with White-Sutton syndrome, a rare genetic disorder that was diagnosed late in life. She recounts the misunderstanding and pain she faced, but also the strength that comes from acceptance.

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Qui brille au combat

Adapted from Joséphine Japy’s film of the same name, Qui brille au combat immerses us in the daily life of a family torn apart by Bertille’s rare illness, which went undiagnosed for a long time.

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Image for Jack and the Amazing Cell City

Jack and the Amazing Cell City

Jack loves superheroes. But when he learns that he has Mosaic Variegated Aneuploidy syndrome, or MVA, he has a lot of questions about what is happening inside his body.

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Image for SoIn for Society and Inclusivity #6

SoIn for Society and Inclusivity #6

The seventh art, art therapy… SoIn #6 highlights how art can serve as an outlet, a form of therapy to exorcise, sublimate, or transcend disability—hence the introduction of the “Art Minute” in the magazine…

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Little Issue #15

Little issue is a free magazine for children living in underserved communities. It contains scientific and educative activities.

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Image for Uncovering Rare Disease. Volume 5

Uncovering Rare Disease. Volume 5

Science (American Association for the Advancement of Science) magazine, in collaboration with Fondation Ipsen, offers international scientific webinars for the general public. This special edition book compiles all of the conversations from the 2025 webinars, which are reproduced in The Rare Disease Gazette.

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The Rare Disease Gazette #33

In this edition, Erika Berg, PhD, hosts a conversation about Building a global community for rare disease.

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Guerriers pacifiques

Since when have humans been participating in sports? And what exactly does that mean? The word, which derives from the verb *desporter* meaning “to frolic,” dates back to the 12th and 13th centuries. It encompasses all pastimes, from horseback riding to more leisurely pursuits such as conversation or embroidery.

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Image for The Rare Disease Gazette #32

The Rare Disease Gazette #32

In this edition, Erika Berg, PhD, hosts a conversation about The Ethics of Rare Disease: Balancing the Needs of the Few with the Needs of the Many.

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The Rare Disease Gazette #31

In this edition, Erika Berg, PhD, hosts a conversation about Humans and AI Collaborating to Solve Rare Disease Challenges: Opportunities and Pitfalls.

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Mental Health in Adolescence

How can we support adolescent mental health? Anxiety, sadness, social pressure, identity struggles ... adolescence can be overwhelming. In this illustrated book, epidemiologist Maria Melchior and artist Chaz Hutton cut through the myths to explain what shapes young people’s mental well-being, how early experiences and social inequalities matter, and why prevention is key.

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Artifical Intelligence in Healthcare

Will AI help cure diseases, or put our health at risk? Is it a revolution, or just another overpromise? In this illustrated book, artist Chaz Hutton and expert Hugues Berry cut through the myths to explain what AI in healthcare really is, what it can (and cannot) do, and why it matters for all of us.

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Our catalog is available for download in PDF format

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