Science
The Rare Disease Gazette #25
In this edition, Erika Berg, PhD, hosts a conversation about Bright breakthroughs: Real stories of beating rare disease.
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Free books for all ages, providing knowledge and advice on rare diseases, health and disability.
Comics, Mangas
ADHD
Evie is creative, curious and smart. So why is it difficult for her to focus on homework, keep track of things and even finish setting the table? Evie has ADHD, which stands for attention-deficit/hyperactivity disorder.
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Science
Advancing Inclusion
Featuring a comprehensive framework for sustainable change, it equips scientific leaders, educators, leaders, and policymakers with the tools to foster diversity, equity, and belonging in STEMM fields, creating opportunities for equitable advancement.
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Science
Rare Diseases, from A to Z. Volume 2
26 letters, 26 rare diseases, 26 artworks : this alphabet book is an invitation for openness and for more recognition of rare diseases in our society. By putting words and images to these conditions, we contribute to breaking the isolation of patients and raising collective awareness.
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Children
Moon, the Little Raccoon
Every morning, Moon, a little raccoon, faces the teasing about his father’s clumsy movements, caused by a rare illness...
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Science
Venture Philantropy
This book is a translation of the NAS report on venture philanthropy. A must-read for those committed to reshaping medical research and delivering hope to millions through cutting-edge, actionable solutions.
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Practical
La Dépression. Savoir quand demander de l’aide
This book is adapted from Older Adults and Depression. Knowing When to Get Help, from the National Institute of Aging at NIH.
The information it contains is based on medical research. It will help you learn more about depression. There are also tips and practical information sheets to help you recognize and treat it.
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Practical
SoIn for Society and Inclusivity #3
Teaching, sharing, learning to see differently: by making disability an educational resource, we can transform mindsets. Our differences, far from being obstacles, are challenges for collective creativity.
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Science
The Rare Disease Gazette #24
In this edition, Erika Berg, PhD, hosts a conversation about Keys to success: Unlocking health care access for rare disease.
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Comics, Mangas
Je suis autiste… et alors ?
Maxime Vindrier, 26, is a passionate and talented illustrator. Diagnosed as autistic, he speaks about his condition with authenticity and humor in his book Autistic... So What? where he demystifies his daily life with a light and accessible tone.
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Biographies
Recueil de nouvelles. Histoires de vie avec la SLA
Through this collection of short stories, ARSLA not only provides a platform for voices that dare to confront this reality but also pays tribute to the resilience and humanity that endure despite the pain.
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Science
The Rare Disease Gazette #23
In this edition, Erika Berg, PhD, hosts a conversation about Standing out in the storm: Caregiving in rare disease
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