Books

Practical

From Giving to Impact: Venture Philanthropy

Venture philanthropy is giving that works. It’s bold, structured, and built to solve real problems—not just fund them. Venture philanthropy (VP) offers a different path. It combines the heart of philanthropy with the tools of business.

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Practical

SoIn for Society and Inclusivity #3

The year 2025 marks a major milestone. It has been twenty years since the law on equal rights and opportunities, participation, and citizenship for people with disabilities laid a fundamental framework for our society. Twenty years of struggles, progress, achievements — and of ongoing challenges. Twenty years of a promise: the promise of a truly inclusive society, where everyone has a place, where difference is no longer an obstacle but a strength.

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Comics, Mangas

Hemophilia

Weston loves being in the action. As the goalie for his traveling soccer team, he’s often running for a save. When he’s not on the field, he might be biking, rock climbing or playing basketball. But for Weston, an injury such as from a fall or a collision could be dangerous.

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Science

The Rare Disease Gazette #25

In this edition, Erika Berg, PhD, hosts a conversation about Bright breakthroughs: Real stories of beating rare disease.

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Comics, Mangas

ADHD

Evie is creative, curious and smart. So why is it difficult for her to focus on homework, keep track of things and even finish setting the table? Evie has ADHD, which stands for attention-deficit/hyperactivity disorder.

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Science

Advancing Inclusion

Featuring a comprehensive framework for sustainable change, it equips scientific leaders, educators, leaders, and policymakers with the tools to foster diversity, equity, and belonging in STEMM fields, creating opportunities for equitable advancement.

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Science

Rare Diseases, from A to Z. Volume 2

26 letters, 26 rare diseases, 26 artworks : this alphabet book is an invitation for openness and for more recognition of rare diseases in our society. By putting words and images to these conditions, we contribute to breaking the isolation of patients and raising collective awareness.

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Children

Moon, the Little Raccoon

Every morning, Moon, a little raccoon, faces the teasing about his father’s clumsy movements, caused by a rare illness...

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Science

Venture Philantropy

This book is a translation of the NAS report on venture philanthropy. A must-read for those committed to reshaping medical research and delivering hope to millions through cutting-edge, actionable solutions.

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Practical

La Dépression. Savoir quand demander de l’aide

This book is adapted from Older Adults and Depression. Knowing When to Get Help, from the National Institute of Aging at NIH. The information it contains is based on medical research. It will help you learn more about depression. There are also tips and practical information sheets to help you recognize and treat it.

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Practical

SoIn for Society and Inclusivity #3

Teaching, sharing, learning to see differently: by making disability an educational resource, we can transform mindsets. Our differences, far from being obstacles, are challenges for collective creativity.

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Science

The Rare Disease Gazette #24

In this edition, Erika Berg, PhD, hosts a conversation about Keys to success: Unlocking health care access for rare disease.

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