Books

Developed through collaborations between experts, artists, and authors, our publications—available for all ages and in multiple languages—focus on education and raising awareness about health, disability, and rare diseases. To ensure they remain free, our printed books are now distributed exclusively through our partners, as well as a network of teachers and public libraries. All of our publications are still available free of charge in digital format via the buttons on each book’s page.

Image for Mental Health in Adolescence

Mental Health in Adolescence

How can we support adolescent mental health? Anxiety, sadness, social pressure, identity struggles ... adolescence can be overwhelming. In this illustrated book, epidemiologist Maria Melchior and artist Chaz Hutton cut through the myths to explain what shapes young people’s mental well-being, how early experiences and social inequalities matter, and why prevention is key.

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Image for Artifical Intelligence in Healthcare

Artifical Intelligence in Healthcare

Will AI help cure diseases, or put our health at risk? Is it a revolution, or just another overpromise? In this illustrated book, artist Chaz Hutton and expert Hugues Berry cut through the myths to explain what AI in healthcare really is, what it can (and cannot) do, and why it matters for all of us.

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My Coloring Book

A coloring book inspired by the “Les Enfants de la Génétique” collection, designed to raise awareness among young children aged 3 and up about diversity and inclusion.

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Image for Raregivers™ Emotional Journey Map Guidebook

Raregivers™ Emotional Journey Map Guidebook

One in ten families worldwide are living with uncured rare, chronic and complex diseases - many more are undiagnosed. Our community is global, reaching every remote corner of every country on earth.

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Image for Maux rares, mots précieux

Maux rares, mots précieux

On International Rare Disease Day 2026, the Filière AnDDI-Rares is giving voice to those affected by rare diseases. This collective work brings together quotes and emotions that illustrate what it is like to live with a rare disease.

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Image for The Rare Disease Gazette #30

The Rare Disease Gazette #30

In this edition, Erika Berg, PhD, hosts a conversation about Funding rare disease research: Collaboration to accelerate treatment innovation.

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Image for Alternate Funding Mechanisms in Rare Diseases

Alternate Funding Mechanisms in Rare Diseases

For decades, rare disease research has been caught between two worlds: public grants that are too short-term to sustain discovery, and private investment that sees too little market potential to engage. Thousands of promising ideas never leave the lab, not because they failed, but because the funding system did. This book is written to change that.

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Image for Beyond Sight

Between blind soccer, a passion for manga, and community projects, Christopher Bourgeois forges ahead without slowing down. As a child, teenager, and adult, he learns to reinvent himself and turns every obstacle into a new path.

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Image for Il est autiste… et alors ?

Il est autiste… et alors ?

Following on from Je suis autiste... et alors ?, published in 2024, Il est autiste... et alors ? is a new awareness-raising tool, this time from the perspective of Alexis Leclaire, a special needs teacher who has been involved with GEMA06 for many years.

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Image for SoIn for Society and Inclusivity #5

SoIn for Society and Inclusivity #5

This new issue of SoIn was born out of this desire. It aims to give a voice to unique journeys, not to put them on a pedestal, but to see them live, act, create, love... just like everyone else.

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Image for Well-Being in Rare Diseases

Well-Being in Rare Diseases

Living with a rare disease is not only a medical experience—it is a human one. It reaches into every part of life: the body that struggles, the mind that questions, the family that hopes, and the community that rallies. This book began with that truth and has followed it through the many ways people find comfort, meaning, and strength when medicine alone is not enough.

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Image for The Rare Disease Gazette #29

The Rare Disease Gazette #29

In this edition, Erika Berg, PhD, hosts a conversation about Building strength together: How rare disease caregivers form communities to support each other and their loved ones.

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Discover our catalog

Our catalog is available for download in PDF format

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