Science
The Rare Disease Gazette #23
In this edition, Erika Berg, PhD, hosts a conversation about Standing out in the storm: Caregiving in rare disease.
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The Rare Disease Gazette
Our monthly magazine dedicated to rare diseases.
In collaboration with Science AAAS.
Science
The Rare Disease Gazette #22
In this edition, Erika Berg, PhD, hosts a conversation about Blooming against odds: Successfully navigating mental health in rare disease.
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Science
Uncovering Rare Disease. Volume 3
Science (American Association for the Advancement of Science) magazine, in collaboration with Fondation Ipsen, offers international scientific webinars for the general public. In 2023, these webinars focused on advocacy in rare diseases.
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Science
The Rare Disease Gazette #21
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Driving Advances in Technology.
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Science
The Rare Disease Gazette #19
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Taking care of caregivers.
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Science
The Rare Disease Gazette #18
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Working the regulatory angle.
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Science
The Rare Disease Gazette #17
In this edition, Erika Berg, PhD, hosts a conversation about advocacy in rare disease: Closing the funding gap.
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Science
The Rare Disease Gazette #20 SPECIAL EDITION
In this special edition, Erika Berg, PhD, hosts a Fireside Chat about the intersection between the FDA and rare disease, with Robert M. Califf, Commissioner of Food and Drugs at the United States Food and Drug Administration (FDA).
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Science
The Rare Disease Gazette #16
In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts on crafting the public narrative.
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Science
The Rare Disease Gazette #15
In this new issue, Erika Berg, PhD, hosts a conversation with some of the world’s leading experts to survey the landscape.
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Science
Uncovering Rare Disease. Volume 2
This special edition gathers all the conversations with the experts invited during our 2022 webinars (diagnosis, treatment and advocacy in rare disease).
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Science
The Rare Disease Gazette #14
In this Rare Disease Gazette, some of the world’s leading experts discussed about the profoundly personal side of rare disease, to humanize the therapeutic journey of patients.
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