The Rare Disease Gazette – Page 2 of 3 – Fondation Ipsen

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Uncovering Rare Disease. Volume 2

This special edition gathers all the conversations with the experts invited during our 2022 webinars (diagnosis, treatment and advocacy in rare disease).

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The Rare Disease Gazette #14

In this Rare Disease Gazette, some of the world’s leading experts discussed about the profoundly personal side of rare disease, to humanize the therapeutic journey of patients.

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The Rare Disease Gazette #13

In this new issue, international scientists discuss the need to internationalize databases and patient registries for rare diseases.

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The Rare Disease Gazette #11

In this new issue, some of the world’s leading experts in rare diseases discuss personalized therapies.

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The Rare Disease Gazette #12

In this Rare Disease Gazette, experts discuss how patients living with a rare disease in underserved communities can benefit from medical care

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Uncovering Rare Disease. Volume 1

In this special edition, AAAS/Science Magazine has compiled all of the conversations published in 2021 in The Rare Disease Gazette.

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The Rare Disease Gazette #10

In this Rare Disease Gazette, experts invited by Fondation Ipsen discuss the fragmentation of data and disciplines.

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The Rare Disease Gazette #9

In this Rare Disease Gazette, our experts re-imagine rare disease detection and you can discover the history of the Human Genome Project

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The Rare Disease Gazette #8

In this new Rare Disease Gazette, we discuss future pathways, from detection to diagnosis to treatment of rare diseases.

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The Rare Disease Gazette #7

In this rare disease gazette, some of the world’s leading experts discuss the role of primary care in detection and diagnosis of rare diseases.

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The Rare Disease Gazette #6

In this 6th Rare Disease Gazette, find a discussion with leading experts on the psychological cost of rare disorders for patients, families and caregivers.

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The Rare Disease Gazette #5

In this issue of our "Rare Disease Gazette", discover a discussion on Artificial Intelligence, which may help rare disease diagnosis.

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