Science
The Rare Disease Gazette #30
In this edition, Erika Berg, PhD, hosts a conversation about BFunding rare disease research: Collaboration to accelerate treatment innovation.
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Science
The Rare Disease Gazette #29
In this edition, Erika Berg, PhD, hosts a conversation about Building strength together: How rare disease caregivers form communities to support each other and their loved ones.
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Science
The Rare Disease Gazette #27
In this edition, Erika Berg, PhD, hosts a conversation about Redefining Connection: How young people are shaping the future of the rare disease community through technology and innovation.
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Science
The Rare Disease Gazette #28
In this edition, Erika Berg, PhD, hosts a conversation about Bridging silos: How scientists studying rare disease are building cross-disease communities to advance research and innovation.
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Science
Uncovering Rare Disease. Volume 4
Science (American Association for the Advancement of Science) magazine, in collaboration with Fondation Ipsen, offers international scientific webinars for the general public. This special edition book compiles all of the conversations from the 2024 webinars, which are reproduced in The Rare Disease Gazette.
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Science
The Rare Disease Gazette #25
In this edition, Erika Berg, PhD, hosts a conversation about Workplace wins: Finding a fulfilling career and overcoming stigma in rare disease.
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Science
The Rare Disease Gazette #26
In this edition, Erika Berg, PhD, hosts a conversation about Bright breakthroughs: Real stories of beating rare disease.
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Science
Advancing Inclusion
Featuring a comprehensive framework for sustainable change, it equips scientific leaders, educators, leaders, and policymakers with the tools to foster diversity, equity, and belonging in STEMM fields, creating opportunities for equitable advancement.
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Science
Rare Diseases, from A to Z. Volume 2
26 letters, 26 rare diseases, 26 artworks : this alphabet book is an invitation for openness and for more recognition of rare diseases in our society. By putting words and images to these conditions, we contribute to breaking the isolation of patients and raising collective awareness.
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Science
Venture Philantropy
This book is a translation of the NAS report on venture philanthropy. A must-read for those committed to reshaping medical research and delivering hope to millions through cutting-edge, actionable solutions.
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Science
The Rare Disease Gazette #24
In this edition, Erika Berg, PhD, hosts a conversation about Keys to success: Unlocking health care access for rare disease.
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Science
The Rare Disease Gazette #23
In this edition, Erika Berg, PhD, hosts a conversation about Standing out in the storm: Caregiving in rare disease.
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