Practical

Alternate Funding Mechanisms in Rare Disease

For decades, rare disease research has been caught between two worlds: public grants that are too short-term to sustain discovery, and private investment that sees too little market potential to engage. Thousands of promising ideas never leave the lab, not because they failed, but because the funding system did. This book is written to change that.

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Practical

Well-Being in Rare Diseases

Living with a rare disease is not only a medical experience—it is a human one. It reaches into every part of life: the body that struggles, the mind that questions, the family that hopes, and the community that rallies. This book began with that truth and has followed it through the many ways people find comfort, meaning, and strength when medicine alone is not enough.

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Practical

From Giving to Impact: Venture Philanthropy

Venture philanthropy is giving that works. It’s bold, structured, and built to solve real problems—not just fund them. Venture philanthropy (VP) offers a different path. It combines the heart of philanthropy with the tools of business.

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Practical

Entrepreneurs have the DACMAR Advantage

DACMAR is a FAST BUSINESS GUIDE for newbie biotech entrepreneurs. GIVE ME 5 MINUTES: If you know nothing about modern biotech business lingo, grab this book and read the LEARNING BOXES.

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Practical

A Race against time

Making medicines is complex and, requires meticulous research, innovative thinking, and unwavering dedication. In the realm of rare diseases, this journey is even more complex because the illnesses are so rare.

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Practical

Science Communication

The purpose of this guide is to encourage communicators to convey science effectively and to help scientists communicate their findings to the public

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