Watch Now: Ida – Beyond Stigma.
What does advocacy look like through the eyes of a sibling? In Ida – Beyond Stigma, directed by Fondation Ipsen, meet Ida, a member of the RDI Youth Leadership Programme from Croatia. Ida shares her powerful advocacy journey as the sister of Karlo, who is living with NF1 (Neurofibromatosis Type 1).
Her story is a reminder of the vital role families play in rare disease advocacy, and how lived experience can inspire meaningful change.
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