Rare Disease Discovery: Innovations in Diagnostics and Therapeutics
The UCSF Catalyst Program, with Fondation Ipsen, welcomes you to a one-day virtual rare disease symposium with a focus on the interdisciplinary development of new diagnostics, new therapeutics and social advances for patients and families
Accelarating the dissemination of knowledge on rare disease
This program aims to develop Orphanet’s rare disease ecosystem knowledge base and producing the rare disease community’s newsletter, OrphaNews International
Improve visibility of patients living with a rare disease
This complete program focused on patients living with a rare disease is carried out in collaboration with Eurordis, the european non-profit alliance of 984 rare disease patient organisations from 74 countries.
UNESCO Science Report
Fondation Ipsen and UNESCO partnered for the publication of the Science report "A race against time for a smarter development".
New manga book series: Athletes living with disabilities
Our new series of manga books will focus on athletes living with disabilities and highlight their lives as top ranking athletes.
Science Webinars: rare disease diagnosis
These international webinars gather the world's leading scientists to discuss how to improve rare disease detection.
Reaching children in underserved communities
Little Issue is a free magazine distributed in underserved communities to raise awareness about health issues.
Engaging journalists to report about rare diseases
Gathering journalists, patients and experts to raise awareness about rare disease detection.
Children’s books on rare diseases
A professional artist collaborates with pediatric patients to bring their experiences to life.
Patient advocacy groups
Fondation Ipsen offers micro-grants to patient advocacy groups to help them promote their mission.
Rare disease: Needs assessment
We do not know the answers, and so we are asking the rare disease community what it needs.